Blog Manifesto

Blog Manifesto


This blog is dedicated, as the title would suggest, to the qualities of being young. We are young writers. We are playful and sensitive, fluid and changing. We are unashamed with our art. We wonder at the world, puzzle over the meanings of things and twirl in delight at images and ideas that float by, grabbing at them as they pass. We are curious and constantly inquiring and prying concepts open and taking assumptions apart. We are on the ground, close to the earth. We have bare feet and wiggle our toes into nature. We carry our blankies still and wrap up cozy and comfy with each other and tell ghost stories and shiver at creepy things. We laugh and we cry and we take a lot of naps, drained from our outings and exertions.

We write as gifts to each other, tying them up in ribbon and leaving them around for each other to find, hiding and waiting for the person to wake up and read. Surprise! We weave our stories together to create a bond. One writes, then the other. then another again. We have a shared reality that we have crafted, bit by piece by patch, by string. We write simple, honest authentic things, with our unique voices. You can tell each one of us from the other, without knowing who wrote what. Our voices are clear and gentle and original. We whisper and our personalities roar! Like children, our feelings are strong, our passion for what we write shakes us. We are moved and sometimes left breathless, by our own words or the words of each other. We cannonball into each others spaces. We fall backward into each others writing, like into a pile of leaves or a soft bed. We gobble and grin and ask for more. (footnote kudos to JC)

Then we go to bed, wake up to a new day and do it all over again!

Tuesday, March 6, 2012

Fatigue that coffee doesn't fix.

Fibromyalgia is not just muscles, joints and tendon pains.  In many peeps, like myself,  it is also extreme fatigue.  Extreme pain and extreme fatigue in an endless cycle.

When I am in pain, my rest is disturbed.  When my rest is disturbed, I feel more pain.   Long naps are followed by mind numbing pain.   The fatigue makes the pain unbearable.

The daily activities of life take on new meaning when you have something like a permanent flu in your body.  Get dressed? Maybe... do I really need shoes too?   sigh.

I cry easily when I am in a pain fatigue cycle.   Tears flow.  Memory disappears.  I exist in a fog of fuzzy activities.  I retreat from friends, before they discover I am in pain.  I keep it to myself, if I can.

Once I remember being so miserable,  I crawled into a Fibro support forum and made a one word post.


OW.

That's all I had in me.  I was a stranger.  They didn't need to know anymore,  They'd been there.
I got air hugs.  Real hugs hurt too much.  They understood.   They didn't say I'm sorry.  They said.  I know. I understand. I've been there.

   I am spiraling down into another pain cycle today. I won't go down without a fight.  :)




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