Blog Manifesto

Blog Manifesto


This blog is dedicated, as the title would suggest, to the qualities of being young. We are young writers. We are playful and sensitive, fluid and changing. We are unashamed with our art. We wonder at the world, puzzle over the meanings of things and twirl in delight at images and ideas that float by, grabbing at them as they pass. We are curious and constantly inquiring and prying concepts open and taking assumptions apart. We are on the ground, close to the earth. We have bare feet and wiggle our toes into nature. We carry our blankies still and wrap up cozy and comfy with each other and tell ghost stories and shiver at creepy things. We laugh and we cry and we take a lot of naps, drained from our outings and exertions.

We write as gifts to each other, tying them up in ribbon and leaving them around for each other to find, hiding and waiting for the person to wake up and read. Surprise! We weave our stories together to create a bond. One writes, then the other. then another again. We have a shared reality that we have crafted, bit by piece by patch, by string. We write simple, honest authentic things, with our unique voices. You can tell each one of us from the other, without knowing who wrote what. Our voices are clear and gentle and original. We whisper and our personalities roar! Like children, our feelings are strong, our passion for what we write shakes us. We are moved and sometimes left breathless, by our own words or the words of each other. We cannonball into each others spaces. We fall backward into each others writing, like into a pile of leaves or a soft bed. We gobble and grin and ask for more. (footnote kudos to JC)

Then we go to bed, wake up to a new day and do it all over again!

Wednesday, March 7, 2012

THAT WASHED OUT FEELING!

FATIGUE:

I thought I was just plain tired all the time…until I figured it out that it is a combination of tiredness and fatigue.

RA causes fatigue…you go to bed and get a good nights sleep and wake up like you didn’t sleep at all. The only good thing is that I may wake up and have minimal joint pain which can better or worsen as the day goes on. Then on the other hand, I may wake up and not be able to move my joints without such pain that makes me want to find a comfort zone and just lay still. Depressing!

Meds cause tiredness…some cause cancer…hurray!!! double whammy! Depressing!

What is more depressing than the illness itself is when I am having a great day, putting my hair up, putting make-up on, putting a big smile on my face and I go out in public…ready to meet the world and I am face to face with familiar people and they look at me and say “you look so tired”! What the heck!!! I thought I looked pretty good. Obviously through the eyes of others, I didn’t. It took me hours to look this way... The tired look!!! Mhm…sure!
Depressing!

People look at me differently, but I still see them through the same eyes that I’ve always had. My appearance has changed………….And... I can see you!

So whether I am tired or fatigued…..☺
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